Today 25 cities in nine countries have seen protests demanding change. Across the world shoes have been seen abandoned on doorsteps, driveways and gardens. People are fighting to raise awareness of an underfunded and ignored disease: ME/CFS. The #MillionsMissing campaign is asking for increased government funding for research, clinical trials, medical education and public awareness.
The #MillionsMissing website explains both ME/CFS and the protest much more eloquently than I ever could, but before delving into that rabbit hole (or even if you don’t have the time or inclination to do so), I would recommend watching this video.
There are so many things that I’m missing.
I miss being able to take the boys to school each day.
I miss being able to jump in the car and just drive, to go wherever we want and do whatever we feel like.
I miss being able to get up and go in the morning, without worrying about or suffering the consequences.
I miss daily showers. Even if I have the energy it still hurts too much.
I miss being able to read a book, even if I only used to read trashy paranormal romance.
I miss being able to walk without pain.
I miss being able to take the boys to do things. What those things are doesn’t really matter, just the fact that I used to be able to.
I miss swimming.
I miss nail art.
I miss working. I never thought I’d say that one but I actually do.
I miss hanging out with friends for an hour or two.
I miss being able to cook and bake.
I miss riding my bike.
I miss being able to think clearly.
I miss being able to look after others properly.
I miss being able to enjoy going to school events for the kids. Now it always comes with such payback that I can’t see the moment for what it is.
I miss a good morning’s shopping trip.
I miss spending quality time with my family.
I miss the times when life didn’t revolve around this illness.
I am one of the #MillionsMissing.